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Rare Disorders

  • Graph - Canadian Rare Disease Advocacy Organizations: Online Communities

    The Power of Rare Disease Advocacy in Canada

    Written by: Christopher Ward | Published: 10/5/15

    Rare disease advocacy groups are using traditional and social media to present a unified voice to policy decision makers. 

     

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    Category:
    Articles
  • Accessing Drugs for Rare Diseases in Canada: The Patient Perspective

    Written by: Elisabeth Fowler | Published: 11/4/09

    Elisabeth Fowler delivered the attached presentation at the Drug Information Association conference in Ottawa, Canada in November, 2009.

     

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    Category:
    Presentations
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